33 Comments

So much love to you and your family Lyle. I do think we underestimate our capacity to adjust to whatever our "normal" is, no matter how incredible or devastating that normal would have seemed to us before. (And I always get nervous holding babies, too!)

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Beautifully written, as always Lyle. I love when Em gets to join our Wayfinder meetings!

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Thank you for this, Lyle. I consider what you’re doing with these essays to be vitally important work in demystifying this experience and giving people a window into this often unremarked upon reality. Really, excellent stuff as always.

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So glad I signed up for your newsletter; I love how comfortable you are in opening your life and heart to your readers. I have no kids of my own but became my mom’s mom 10 years ago when she was diagnosed with Alzheimer’s. Two different disabilities— same purpose, focus, love and compassion.

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Thank you, thank you, thank you for this beautiful work you are doing both for Em and everybody following your story.

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Keep the faith, Lyle. Our 25-year-old son with CP still cannot sit up on his own. Still, he lives in his own apartment and is supported by a wonderful team of caregivers and lots of friends. He has a full life with lots of interests, and he's very proud to NOT live with his parents. :) We never know what the future holds. That's why it's important to live in the moment. Thanks for writing.

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Aug 18, 2023Liked by Lyle McKeany

All the comments say it all! Thank you for sharing your stories about Emily….and pictures. She seems very happy and is such a beautiful little girl. I’m not sure if you realize what a gift you give to us all by sharing your stories.💕thank you

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Aug 13, 2023Liked by Lyle McKeany

(I think what got to me about the last sentence is that you ARE a typical dad... and also an extraordinary dad... in extraordinarily challenging circumstances.)

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Aug 12, 2023Liked by Lyle McKeany

The last line got me in the heart. As all your writing does.

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One day at a time. Focus on the smiles. Lots to learn, celebrate and embrace about your version of normal.

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This is the very first story I read of yours, Lyle, and it made me an instant subscriber. Reading it for the second time affected me just as much - spiritually and physically. It felt like someone reached into my chest and gave my heart a tight squeeze. You are all three so brave. I know you have to be, you have no other choice, but still -- such inspiration! I am counting my many blessings this morning.

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Aug 12, 2023Liked by Lyle McKeany

Another well written piece. Em and Allison are both blessed to have you. Thank you for sharing your thoughts, your life and your love for Em. I love the photos ♥️ Auntie Barb

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Wonderful piece, Lyle. I admire your dedication to being open and sharing these experiences with us. <3

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Feb 6, 2022Liked by Lyle McKeany

Infinitely inspiring, thank you Lyle

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Feb 5, 2022Liked by Lyle McKeany

Em hit the parent and sister jackpot!

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