Em challenges you deeply, it seems, and gets you to ask the right questions of yourself and to look deeply. By sharing this, you're getting me to ask myself some hard questions and to look more closely. I'm glad for Em. I'm glad for you. Thank you.
The details about the size of your house, growing equipment size, and inability to have a full-sized Christmas tree really gave us readers more insight into another layer of challenges you face. Also, it must be encouraging to know that now that you’ve engaged with more educational professionals, you will gain more ability to understand her communications!
Proud paid subscriber and old buddy,
Calling yourself out to do better is heroic. Might not seem so, but to an outsider it absolutely is.
Dear Lyle, my heart and prayers to our Heavenly Father always include Em and of course you and Allison. I have shared your latest posts with several family members who are Dear Ems relatives as well, Jennie is my niece in case you weren’t aware. I hope you are a Christian and ask for His strength and wisdom to guide you and comfort you. My love and prayers for you, Allison and Emily♥️🙏
I think the future is promising with implant technology and stimulators, etc. She's stuck in there, but I would always try to hold on to hope that she'll find a way out.
I was able to read your post because someone shared it with me.
As I am a type 1 diabetic the experience sounds familiar to me. I know is not the same, I have no disabilities, but I know that my mum who has widowed one year before had another experience with that. When you have a child you always think or hope that everything is gonna be alright, but suddenly you find that your little girl has a health problem. Nobody is prepared for that, and sometimes doctors don't help so much. You are sent back home with sterile instructions and you are supposed to be able to take care properly of your child...
It's a hard story, more frequent than we think, but I'm sure that you are going to do your best with your little girl.
Thanks for being open with sharing this, Lyle. I’m glad I started reading your Substack. I feel like I’m getting to know you better through it. It sounds like, through all these challenges, you’re learning and growing along with Em. That’s a great thing! It echoes some thing I’ve been learning in my own life: nothing is purposeless. I believe that God brings all things into our lives for a reason, even if we don’t understand why at the time.
You're a great parent.